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sâmbătă, 27 martie 2010

Paste fericit!


In aceasta saptamana luminata, Dumnezeu sa coboare in fiecare dintre voi, sa va lumineze gandurile, sa va aline durerile, sa fie aproape de voi si de cei dragi voua "de acum si pana in veac".
Va doresc sa fiti luminosi, fericiti si sanatosi si sa va bucurati de bunul Dumnezeu, de darurile lui si de plinatatea vietii voastre. Sa aveti un Paste binecuvantat si fericit!

duminică, 21 martie 2010

Multumiri

Nu credeam ca am sa ajung sa cer ajutor in felul acesta. Am fost putin retinuta si nu am avut curaj sa sper. Acum, cand deja exista raspuns la strigatul meu de ajutor, cred din ce in ce mai mult ca am sa reusesc sa plec la Hanovra.

Vreau sa multumesc din suflet celor care au raspuns la apelul meu!

Haralambie Marina
Constantin Saulea
Preda Cristina

sâmbătă, 20 martie 2010

joi, 11 martie 2010

Hanovra

Am cerut ajutor la Hanovra. Postez mai jos corespondenta mea cu Dr. Rudolf Fahlbusch.

Hello, my name is Daniela Melnic, i`m from Bucharest, Romania. 8 months ago I was diagnostiched by Dr. Dumitrache Lacramioara with tyrotopinoma, diagnostic which was confirmed at Parhon Hospital of
Endocrinology, by Dr.Corin. Badiu. They explained me that the only curative treatment is the surgical one with removal of adenoma, intervention witch i`m agre with, but unfortunately I can`t do it in my country. I have to tell you that from December the doctors from Parhon Hospital proposed me to have treatment with somatuline 3 fi/month, but considering the very high price I can`t do it, and I received only 1 fi somatuline/month , totally 3 fi, until now, with very good response to treatment(lowering
the level of blood hormones). And I also have symptomatic treatment with beta blockers( propranolol). But I have to say that unfortunately I can`t have this treatament any moore, because of the very high price.
So I understand that the surgery is urgent because the blood level of hormones now is very high again.
Doctors from Romania recomandend me to have this surgery intervention in your clinic, and if you are agree to accept me as your pacient, I would like you to send me an estimative price of it, because I have to gather the money. If you are agree to accept this case, and please do it, I will send you the cerebral IRM and blood samples results to have an objective opinion of the case. Thank you for your time and I `m waiting for an answer, which I hope will be positive.
Thank you. Daniela Melnic.


Dear Mrs Melnic,
Thank you for contacting me.I am very well familiar with the rare thyreotropinonas .beeing among the first neurosurgeons ,who had operated on these tumors about35 years ago.Meanwhile it came out that sandostatin is effective in a number of cases,but as you said very expensive on a long term run..mainly forever!A second reason for surgery is the removal of the tumor mass, which sometimes shrink ,but normally never disapperars under sandostatin.
Unfortunately I do not know your MRI result,please inform me as soon as possible.Maybe sending the disc with data. Sometimes the pat.need radiotherapy in addition,but not earlier then 3 months after surgery,when the op-result will be controlled.I myself am besides a neurosurgeon,and especially a pituitary surgeon with about 4 500 operations for pituitary tumors ,also a neuro- endocrinologist,which is very helpful for the patient's perioperative phase. The whole costs for the hospital and private treatment, especially surgery will be 24 0000 till 30 000€,depending on the operative procedure length of hospital stay- 6 to 10 days normally,some patients are able to go early to the hotel ,beeing treated as outpatients...- and so on .Normally the administration demands 30 000€ as deposit.meaning that the not used money will be returned to you after treatment. I will be available for surgery the whole March,latest April 6/7,then because of longer absences for congresses from May 10 onwards.
Please do not hesitate to contact me again for any questions.How is vision? Please take in mind that this tumor causes hyperthyroidism, a not so nice metabolic disease,that is why you should come as early as possible.
Best regards

Prof. Dr. med. Rudolf Fahlbusch
Director Endocrine Neurosurgery and Intraoperative MRI
International Neuroscience Institute
Rudolf -Pichlmayrstr.4
30625 Hannover
Germany
phone +51127092828
fax +51127092987
mailto: fahlbusch@ini-hannover.de

miercuri, 3 februarie 2010

luni, 1 februarie 2010

eu asa cum sunt















Cu fiul meu, Vlad.























Acasa

povestea cu TIROTROPINOM

In urma unor dureri insuportabile de cap- cu stari de lesin si voma- si a scaderii considerabile a vederii- ajunsesem sa citesc cu ochelarii +1 si cu o lupa, in luna ianuarie a anului 2007 am hotarat sa merg la un medic oftalmolog. Am fost la un cabinet particular al unui profesor din Bucuresti, unde dupa ce mi-a facut analiza de camp vizual si tomografie retiniana a stabilit ca am glaucom normotensiv.
In data de 22 ianuarie m-a internat in spital unde am fost supusa unei analize de curba tonometrica si unei probe de stimulare a tensiunii intraoculare, din spital am plecat asa cum am venit, adica fara nici un tratament singurul lucru care m-a ajutat au fost dioptriile schimbate, dioptrii cu care reusesc sa vad cat de cat normal.
In luna iulie 2009 durerile de cap erau tot acolo, sunt suportabile dar sunt dureri de cap, probabil ca le-as mai fi ignorant daca nu ar fi aparut un tremurat permanent si palpitatiile. La insistentele familiei mele, la argumetele fiului meu, Vlad , am ajuns din nou la medic. In urma unor analize de sange si dozari hormonale s-a stabilit ca exista valori crescute ale T3, T4 si FT3+FT4. Mi-a fost recomandat sa consult un medic endocrinolog. In scurt timp am facut cateva serii de analize si mi-a fost recomandat un RMN.
In data de 3 August 2009, in urma examinarii RMN am fost diagnosticata cu TIROTROPINOM , nu intelegeam atunci ce inseamna dar am simtit din primul moment ca nu mi-ar fi lipsit daca nu l-as fi avut.
Atunci am devenit “bolnav cronic in Romania”, intr-un sistem care, pentru ca Tirotropinomul este un diagnostic rar nu l-au inclus in nomenclatoare, deci nu exista pe minunatele liste cu facilitati …
Mi s-a explicat ca este vorba de o tumora de hipofiza de un centimetru si din acel moment drumurile mele la spitale au fost saptamanale si zilnice. Am inceput un tratament cu betablocante (propranolol si aspacardin) pentru a-mi opri tremuraturile si palpitatiile. Am ajuns mai apoi la un alt medic, neuroendocrinolog, care mi-a prescris Somatuline. Somatuline fiind un citostatic pe care trebuie sa-l fac conform prescriptiilor medicale 1 fiola la 14 zile, rolul lui este de a opri evolutia tumorii si secretia acesteia de TSH pana in momentul operatiei.

Am ajuns la sistem. Tirotropinomul, o tumora hipofizara secretanta de TSH este un diagnostic rar. Tratamentul citostatic preoperator nu-mi este asigurat de catre stat, cel putin nu in intregime. Imi pot asigura o fiola lunar in conditiile in care medicul curant imi prescrie doua. Pretul unei fiole este de 2100 lei, salariul meu este de 1900. Ceva nu se potriveste, mie nu-mi ies calculele, am platit cotizatie CAS cam cat o viata de om.
Acum incerc sa plec la Hanovra pentru interventie chirurgicala. Astept programarea si o calculatie de costuri de la medicii cu care corespondez.